Carolina Well What a wonderful life I've had! I only wished I'd realized it sooner. -Coleman

Resources

There are many resources for cancer survivors, however the amount of information and websites can be overwhelming! Below is a list of some helpful resources.

National Survivorship Resources
North Carolina State Resources
UNC and Community Resources

Books on Cancer Survivorship
Caregivers
Children and Cancer
Clinical trials
Complementary Therapies
For Children Who Have a Family Member with Cancer
Healthy Living
Inspirations
Listservs
Local Personal Care Services
Lymphedema
Medical Information-Specific Cancers
Online Support
Practical Matters-Financial, Insurance, and Legal Info
Support
Symptom Management
Ways to Give Back
Young Adults and Cancer

Carolina Well and various other communities and organizations across the state have been working to bolster survivorship education and support where YOU live and work and to make that information easy and accessible. The American Cancer Society is adding thousands of resources to their excellent search tool to link you with resources where you live and work. Please make sure to visit www.cancer.org and click on the Find Support Programs and Services in Your Area link. Make sure when you get to the In Your Area page you fill in the zip code and not the city to search.

Disclaimer
The information presented in this website is provided for your general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are aware of your specific situation. We receive no fee for maintaining lists of resources and information. It is the responsibility of anyone utilizing this information to fully research the resources provided. The resources and information is NOT an endorsement of those individuals or practices.

Books on Cancer Survivorship
Cornucopia Cancer Support Center has an excellent resource center with an extensive inventory of books and videos by category: caregiver, dealing with cancer, humor, children and cancer, complementary therapies, end of life, etc.
Oncololink has an excellent section that reviews books and videos on cancer survivorship.
The UNC Patient and Family Resource Center is the hub of support and information at UNC-LCCC. Visit their extensive collection.
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Caregivers
Please visit the Medical Information; Specific Cancers section. Many of the websites in that section have more subject specific caregiver resources.
Stay connected with family, friends and colleagues throughout your cancer journey through a CarePages website. Create a free, private website that makes it easy to provide updates to everyone at the same time, share photos, receive supporting messages, and more.
Helpful articles on being the caregiver of someone with cancer.
NFCA offers a virtual library of information and educational materials ranging from national educational campaigns to Tips and Tools for family caregivers, information on agencies and organizations that provide caregiver support, to communicating effectively workshops.
A model that details how ordinary people can create and operate a unique extended family-type support system to care for a friend or loved one, whether for a month or for years. We also provide links among caregivers and providers to evolve and continually develop our model through evidence-based evaluations and feedback from caregivers and providers.
Provides emotional peer-to-peer support to the wives, husbands, and partners of the chronically ill and/or disabled. Support is offered through various programs and events. Members can share their thoughts and feelings openly with others facing similar circumstances in a supportive, non-judgmental environment.
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Children and Cancer
Parents and children with chronic illnesses or life threatening disabilities can search for helpful resources and medical information regarding their condition in the Brave Kids website.
One of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families.
This website is based on the comic strips created by Ben de Garis, who was a young patient at the Royal Marsden. The Adventures of Captain Chemo have been turned into interactive computer games to help cancer patients worldwide.
Forget Me Not 4 Kids helps ease the burden of families dealing with childhood cancer. To help those dealing with financial challenges, we provide gift certificates for local services and gas cards for transportation assistance. We assist with utility bills and pharmaceutical expenses.
In 1992, young cancer survivor Kenon Neal founded Kids Cancer Network to provide "a dose of hopeTM" for kids and their families isolated by the rigors of childhood cancer treatment. Kids Cancer Network designed and sent over 150,000 FUNLETTER activity magazines to children with cancer nationwide before we went online in 2000... now YOU can print out your very own FUNLETTER at home or in the hospital. You are not alone... enjoy a "dose of hopeTM"!
Planet Cancer is an online community for young adults with cancer. Take a look around at the info and funny stuff on the site. Pop over to our social networking community and talk with other young adults on My Planet. 
Starlight offers a comprehensive menu of outpatient, hospital-based and Web offerings that enable us to provide ongoing support for children and families - from diagnosis through the entire course of medical treatment.
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Clinical trials
The American Cancer Society Clinical Trials Matching Service is a free, confidential program that helps patients, their families, and health care workers find cancer clinical trials most appropriate to a patient's medical and personal situation. Call toll free: 1-800-303-5691. This service works in conjunction with The Coalition of Cancer Cooperative Groups. The coalition is a nonprofit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials.
CenterWatch is a clinical trials listing service where you can find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA.
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.
The National Cancer Institute maintains a database of all cancer-related clinical trials. It is very user-friendly, with drop-down menus for every cancer diagnosis, every stage, every chemotherapy drug, and every treatment option.
Comprehensive Cancer Centers in NC
North Carolina is fortunate enough to have three National Cancer Institute designated Comprehensive Cancer Centers. Visit each center to learn more.
North Carolina is fortunate enough to have three National Cancer Institute designated Comprehensive Cancer Centers. Visit each center to learn more.
North Carolina is fortunate enough to have three National Cancer Institute designated Comprehensive Cancer Centers. Visit each center to learn more.
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Complementary Therapies
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3,400 local offices. ACS offers general information on many cancer topics including CAM. The ACS has resources such as "Complementary and Alternative Methods for Cancer Management" and "Guidelines for using complementary and alternative medicine."
The Annie Appleseed Project, a 501(c)(3) non-profit corporation, provides information, education, advocacy, and awareness for people with cancer and their family and friends who are interested in complementary or alternative medicine (CAM) and natural therapies from a patient's perspective. We are an all-volunteer organization.
OCCAM was established in October 1998 to coordinate and enhance the activities of the National Cancer Institute (NCI) in the area of complementary and alternative medicine (CAM).OCCAM is responsible for NCI's research agenda in complementary and alternative medicine as it relates to cancer prevention, diagnosis, treatment, and symptom management. You can call the National Center for Complementary and Alternative Medicine for Live Help Online chat with a health information specialist (in English or Spanish) Monday through Friday 8:30 a.m. to 5:00 p.m. Call 1-888-644-6226, send an e-mail to info@nccam.nih.gov.
NCCAM is the Federal Government's lead agency for scientific research on complementary and alternative medicine. This center explores complementary and alternative healing practices in the context of rigorous science, trains complementary and alternative medicine researchers, and provides CAM information to the public as well as professionals.
Natural Standard was founded by clinicians and researchers to provide high quality, evidence-based information about complementary and alternative therapies. This international multidisciplinary collaboration now includes contributors from more than 100 eminent academic institutions.
The goal of the Office of Dietary Supplements is to strengthen knowledge and understanding of dietary supplements by evaluating scientific information, stimulating and supporting research, disseminating research results, and educating the public to foster an enhanced quality of life and health for the U.S. population.
Quackwatch Inc. is a non-profit organization founded by Stephen Barrett that states its mission is to "combat health-related frauds, myths, fads, fallacies, and misconduct" with a primary focus on providing "quackery-related information that is difficult or impossible to get elsewhere. Since 1996 it has operated a website, quackwatch.org, that advises the public on unproven or ineffective alternative medicine remedies. Quackwatch has received several awards and has been recognized in the media. Numerous sources cite quackwatch.org as a practical source for online consumer information.
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For Children Who Have a Family Member with Cancer
KidsCan! provides educational and emotional support for the basic needs of children ages 6 to 12, whose parent has been diagnosed with cancer. The program offers a safe, nurturing place for children and their families to help them understand the many aspects of cancer, discuss concerns and develop healthy coping strategies through planned activities each month. Parents are provided with their own forum where they can address parenting concerns and share experiences
Based on research, as well as input and encouragement from parents, siblings and professionals in the oncology world, SuperSibs! was created in October 2002. All agreed that there was a desperate need for services to support and honor the brothers and sisters of children diagnosed with cancer. Since then, thousands and thousands of children and teens have been supported by our program!
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Healthy Living
Please visit the Tools for Wellness section of this website.
For tips on nutrition and cancer care, please visit UNC-Lineberger's Comprehensive Cancer Center's Nutrition Tips page.
Cooking Tips
Getting and Staying Active
An important part of healthy living is staying active through regular exercise. Exercise is a great way for survivors to control fatigue, manage stress, manage or lose weight, strengthen their cardiovascular health and improve mood. Some studies have even shown promising results that regular exercise can improve cancer prognosis in breast and colorectal cancer patients.
Nutrition
This website, from Memorial Sloan-Kettering Cancer Center, provides up-to-date, evidence-based information on herbs, botanicals, and other dietary supplements.
The American Cancer Society website provides useful information and tips on nutrition before, during, and after treatment for cancer.
The Dana-Farber Cancer Institute website on nutrition and cancer provides tips for healthy eating and managing side effects of treatment, as well as an archive of answers to general questions about nutrition during and after cancer treatment.
This website is written by a dietitian who is a 3-time cancer survivor. It provides great suggestions for healthy eating, along with meal ideas and menus. Check out the frequently asked questions section for lots of great information!
All nutrition information on this site is written by a dietitian who is also an expert in cancer nutrition. Click the link for "Eating Well" to find lots of great tips on healthy eating. Click the link for "No Appetite" to find suggestions for managing symptoms during cancer treatment. Other interesting sections provide recipes, frequently asked questions, and research updates.
The National Cancer Institute website presents a variety of in-depth topics related to nutrition and cancer, including effects of treatment on nutrition, nutrition suggestions for symptom relief, and nutrition information on preventing certain cancers.
The American Dietetic Association is the world's largest organization of food and nutrition professionals. Click on "Food & Nutrition Information" for tons of great nutrition resources.
The American Institute for Cancer Research (AICR) is the nation's leading charity in the field of nutrition, physical activity and weight management as it relates to cancer prevention and survivorship. This website has up-to-date information on how nutrition impacts cancer. It also provides great recipes and many free publications.
The Office of Dietary Supplements is a branch of the National Institutes of Health. This website provides information on dietary supplements and vitamin and mineral recommendations.
This website is primarily designed for oncology nutrition professionals. However, patients should check out the "Resources" section for great information on nutrition and cancer.
Recipes
Get diet and nutrition information on healthy eating, a well balanced diet, and discover ways to eat healthy. Dare to eat well.
Smoking Cessation
Smoking and the use of smokeless tobacco are responsible for the majority of all cancers of the lung, trachea, bronchus, larynx, pharynx, oral cavity, and esophagus. In addition, smoking is the leading cause of preventable death in the United States. Quitting smoking is one of the most important things you can do for yourself.
Quitline provides free one-on-one support that can help you quit smoking for good. Quitline pairs you with a Quit Coach, someone who knows what works and what doesn't work when it comes to quitting. Quitline NC is free, confidential, and available 8am to 3am seven days a week. For more information call 1-800-QUIT-NOW.
At Smoking Cessation.org, you'll learn how to break down your smoking triggers and overcome your nicotine addiction. You'll educate yourself about the health risks of smoking and learn how to escape the cycle of quitting and then slipping up and smoking again. You'll find helpful tips, new smoking cessation methods, and the latest information that will help you quit smoking for good.
The Nicotine Dependence Program (NDP) of the University of North Carolina School of Medicine's Department of Family Medicine provides counseling and resources for tobacco use cessation, training for healthcare providers in assisting patients in tobacco use cessation, and education and research in cessation practice. Clinics are Tuesday and Friday Mornings at Family Medicine.
A brochure that describes the Nicotine Dependence Program (NDP).
Weight Management
Maintaining a healthy weight can be important in reducing the risk of cancer recurrence. These resources will help you learn how to control your weight through both diet and physical activity. They include suggestions for how to count and limit calories as well as fun ideas for exercise.
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Inspirations
Talking to someone, or even just seeing them, can be inspiration in and of itself. Please visit our section Connecting With Other Survivors. Below are some other resources that may be helpful. Please send any other ideas you have to info@carolinawell.org.
This site includes Affirmations and essays called the Gift of Cancer and What Cancer Cannot Do.
Writing can be very therapeutic. Alysa Cummings, a cancer survivor, created these "fill in the blanks poetry pages" especially for cancer patients to support them during their journey from diagnosis through treatment and recuperation, eventually to a place of recovery.
At UNC Lineberger Comprehensive the patients are at the center of everything. Visit www.NCcancerStories.org to read stories and see videos about UNC Lineberger cancer survivors. Their stories are shared to offer comfort and hope to those who are facing cancer.
The Web's first cancer resource, provides comprehensive information on cancer. It was founded by University of Pennsylvania cancer specialists. In addition to it's reliable cancer medical information it is an excellent patient support site.
A collection of art made by cancer patients and their loved ones which encourages vision, hope and imagination, all of which foster the healing process.
Collection of poetry submitted by survivors and caregivers to provide hope and inspiration.
Collection of stories submitted by survivors detailing their journey through cancer.
The Navigate Cancer Foundation is a national nonprofit, (based in North Carolina) charitable organization that provides free, expert, confidential, and secure cancer care navigation services to those touched by the disease. Their blog ILLUMINATE contains stories of inspiration and information.
Once diagnosed with cancer, patients can feel isolated and alone, even from those closest to them. Using the Internet as a tool, now they can reach out to anyone, anywhere in the world who wants to share their experience with this devastating disease. They can research, ask questions, post their own story, or they can simply read the stories of those who have been where they are going. From breast cancer to leukemia, these 50 sites cover a variety of subjects.
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Listservs
ACOR offers information and support through its integrated system of online discussion groups. You can join listservs based on specific cancer types and other inquiries. This gives you access to thousands of people across the world, real-time, going through similar challenges. It can be overwhelming, so is a great thing to ask a friend to join to find your answers.
A resource for cancer survivors, families of cancer survivors, as well as all who are touched by cancer.
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Local Personal Care Services
7478 Creedmoor Rd.,  Raleigh, NC 27613 919-841-9447
Carolina Wig Company
217 Main Street Durham, NC 27701 919 688-2782
Color Me Pink, Boutique, Inc
A breast surgery and cancer care boutique that strives to meet the special needs of women who face surgery due to cancer. 2226 Nelson Hwy Ste D2 Chapel Hill, NC 27517 919-419-7375 Mon-Thur: 10:00-4:00 call for appt. if desired
4050 Old Wake Forest Rd, Raleigh, NC 27606 919 876-5712
3434 Edwards Mill Rd. Raleigh, NC 27612 919 785-1085
Hair Fashion
Oak Creek Village 4600 Chapel Hill Blvd. Durham, NC 27707 919 493-2100
404 East Chatham St. Cary, NC 27511 919 469-4688
A project to empower young women through the breast reconstruction process.
People's Beauty Supply
126 W. Parrish Durham, NC 27701 919 683-2355
Positive Outlook
3810 E. Merton Dr Raleigh, NC 27609 919 571-1115
Take One Haircutters/Positive Image
233 S. Elliot Rd Chapel Hill, NC 27514 919 967-9009
Free make-up and make-over! Call 919 966-3097 for Dates and Information.
Wigs and Hair by Charlie
1068 East Harden Street Graham, NC 27253 336 229-9002
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Lymphedema
Lymphnotes is a locally based online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.
The National Lymphedema Network (NLN) is a non-profit organization, founded in 1988 to provide education and guidance to people with lymphedema, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema through publications, conferences and its web site. It seeks to standardize quality treatment for people with lymphedema across the United States, and provides advice to patients and health providers who seek to overturn a health insurer's decision to deny coverage for lymphedema treatments.
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Medical Information-Specific Cancers
Bone and Soft Tissue Cancer
Brain Cancer
Breast Cancer
Breast Cancer Resource Directory of North Carolina contains many links to breast cancer resources, including general educational materials, as well as information on how cancer affects women of different ages and cultural backgrounds. Although specifically dedicated to breast cancer, much of the information is relevant for people impacted by all forms of cancer and includes topics such as insurance, legal, employment, and financial advice. For more information call 1.800.514.4860
A nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life.
Provides lists of cancer centers and advanced treatment clinical trials. Offers free booklets on variety of topics related to specific cancers, their treatments, and tips for coping with treatment side effects. Telephone: 800 422-6237
Offers support groups, survivor networking, educational programs, and advocacy. Some resources and programs available for those who speak Spanish. 1501 Broadway, Ste 1720 New York, NY 10036 Telephone: (212) 719-0364
Carcinoid Cancer
Colorectal
Esophageal Cancer
Gastrointestinal
Gynecologic
A wonderful newsletter for women and their families dealing with ovarian cancer.
For women who are at high risk of getting breast and/or ovarian cancer due to family history & genetic status, and for members of families in which a BRCA mutation may be present.
An umbrella organization for many of the groups listed here.
This group meets on the fourth Wednesday of every month at 6:30 PM at Cornucopia Cancer Support Center. The mission of this group is to further the awareness of Ovarian Cancer symptoms and treatments through educational programming; and supporting women diagnosed with the disease.
Offers support groups, survivor networking, educational programs, and advocacy. Some resources and programs available for those who speak Spanish. 1501 Broadway, Ste 1720, New York, NY 10036; Telephone: 212 719-1204
Non-profit group primarily concerned with funding research for ovarian cancer. One Pennsylvania Plaza, Ste 4800; New York City, NY 10019; Fax: 212 868-1229; Telephone: 212 613-5680
Head & Neck
Leukemia, Lymphoma & Myeloma
Liver
Lung Cancer
Mesothelioma
Pancreas
Pediatric
Prostate
Sarcomas
Skin (Melanoma)
Testicular Cancer
Urology
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National Survivorship Resources
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. It is dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service. Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3,400 local offices. If you have a question or suggestion that you would like to send to your American Cancer Society by email, please use the form provided. Your question will be answered within 3-5 business days. If you need immediate information, please call 1-800-ACS-2345 (or 1-866-228-4327 for TTY). They are available 24 hours a day seven days a week. For more information, please visit the website. Site also available in Spanish.
If you have a question or suggestion that you would like to send to your American Cancer Society by email, please use the form provided. Your question will be answered within 3-5 business days.
The Association of Cancer Online Resources (ACOR) offers free access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders. In addition to supporting the mailing lists, ACOR develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness. Please visit the website for more information.
C3 is an organization, located in Washington DC and with national scope, whose aims include advocacy in research, policy and awareness.
The Cancer Survivors Project (CSP) is an organized, international community of long-term cancer survivors and their friends working together to improve the lives of children and adults after cancer. CSP is committed to making available information regarding physiological and psychosocial late effects of cancer treatment, preventive care protocols, and appropriate health care. For more information, please visit the website.
Cancer.Net is the patient information website of the American Society of Clinical Oncology® (ASCO). ASCO® is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer. This website provides timely, oncologist-approved information to help patients and families make informed health-care decisions. All content is subject to a formal peer-review process by more than 150 medical, surgical, radiation, and pediatric oncologists, oncology nurses, social workers, and patient advocates. In addition, ASCO® editorial staff reviews the content for easy readability. Cancer.Net is reviewed on an annual basis or as needed. For more information, please visit the website, call 1-888-651-3038, or email cancernet@asco.org.
CancerCare is a national nonprofit group that gives free support services to those affected by cancer: people with cancer, caregivers, children, loved ones and those who have lost loved ones. These programs include counseling, education, financial and practical help. They are given at no cost by trained social workers. Founded in 1944, CancerCare helps more than 91,000 people each year. And each year, as many as 1.6 million people visit the website to learn more and find resources. CancerCare also offers free Telephone Education Workshops are a way for people to learn about cancer-related issues from the convenience of their home or office. Leading experts in oncology provide the most up-to-date information on the telephone. These are interactive educational programs to help you and your loved ones better understand and cope with your diagnosis, treatment options, quality-of-life concerns, treatment side effects, pain management, doctor-patient communication and other important topics. Please visit the website for more information, call 1-800-813-HOPE (4673), or send an e-mail to info@cancercare.org.
Candlelighters Childhood Cancer Foundation (CCCF) began in 1970 by a group of parents whose children had been diagnosed with cancer. They came together to lobby for more research, and to support each other through the diagnosis and treatment of this life threatening disease at a time when very few children survived. Today, CCCF is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families. For more information, visit the website or call 1800-366-2223 or email CCCF at staff@candlelighters.org.
Childhood Cancer Guides is a charitable organization whose mission is to serve the childhood cancer community by providing: clear explanations of the various types of childhood cancer, descriptions of state-of-the-art treatments for childhood cancers, emotional support for every member of the family, and access to helpful resources. For more information, please visit the website.
The Colon Cancer Alliance (CCA) is the oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal.
Visit this page to find local chapters and volunteers of the Colon Cancer Alliance.
CureSearch National Childhood Cancer Foundation is dedicated to raising private funds for childhood cancer research for the Children's Oncology Group, the world's largest cooperative cancer research organization. Together, we are committed to conquering childhood cancer through scientific discovery and compassionate care. CureSearch Children's Oncology Group is a network of more than 5,000 physicians, nurses, and scientists whose collaboration, research and care have turned childhood cancer from a virtually incurable disease to one with an overall 78% cure rate. For more information, please visit the website, call (800) 458-6223, or send an email to info@curesearch.org.
Fertile Hope is a national, nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. For more information, please visit the website or call (888) 994-HOPE.
At the Lance Armstrong Foundation, we inspire and empower people affected by cancer. We believe that unity is strength, knowledge is power and attitude is everything. We provide the practical information and tools people with cancer need to live life on their own terms. We take aim at the gaps between what is known and what is done to prevent suffering and death due to cancer. We unite people to fight cancer and pursue an agenda focused on: prevention, access to screening and care, improvement of the quality of life for cancer survivors, and investment in research. Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, the LAF is a registered 501(c)(3) nonprofit organization located in Austin, Texas. For more information, please visit the website or call 1-866-673-7205.
The National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led cancer advocacy organization in the country. Members advocate for quality cancer care for all Americans and empowering cancer survivors. Patient education also is a priority for NCCS, which offers the Cancer Survival Toolbox®. This award winning audio set is provided to Survivors, caregivers and clinicians at no cost. NCCS believes access to credible and accurate patient data is vital to asking for and getting quality cancer care. Call 1-888-650-9127 or visit the website.
OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. OncoLink is designed to make it easy for the general public to navigate through the pages to obtain the information that they want. Through OncoLink you can get comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. The information is updated everyday and provides information at various levels, from introductory to in-depth. For more information, please visit the website * OncoLink has all of its website in English and Spanish.
CancerGuide is a cancer information page written by Steve Dunn, a fellow patient. This page is dedicated to helping cancer patients find the best treatment for their disease by finding, and understanding, the best and latest information on their disease. The focus here is on technical information. For more information, please visit the website.
The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government's principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative amendments have maintained the NCI authorities and responsibilities and added new information dissemination mandates as well as a requirement to assess the incorporation of state-of-the-art cancer treatments into clinical practice. For more information, please visit the website or call 1-800-4-CANCER (1-800-422-6237).
The mission of the Office of Cancer Survivorship (OCS) is to enhance the quality and length of survival of all persons diagnosed with cancer and to minimize or stabilize adverse effects experienced during cancer survivorship. The Office of Cancer Survivorship conducts and supports research that both examines and addresses the long- and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families. For more information, please visit the website, email ncidccpsocsweb-r@mail.nih.gov, or call 301-402-2964.
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North Carolina State Resources
Run by the North Carolina State Center for Health Statistics, the registry has data on all cancer cases diagnosed in North Carolina. Their Web site includes links to numerous publications using these data.
This is a searchable Web portal with information on health-related services in each of the state's 100 counties. Although the site is not specific to cancer, there is a large section on cancer resources in North Carolina, as well as sections on issues relevant to those impacted by cancer. These include insurance, nutrition, medication, stress management, and treatment services.
The Comprehensive Cancer Program is a component of the North Carolina Division of Public Health that is focused on cancer prevention and control. Their Web site provides many resources for providers, patients, and their loved ones; including educational materials and links on how to find treatment, financial assistance, and clinical trials in North Carolina. They administer the NC Cancer Assistance Unit which provides financial assistance for the treatment of low-income, uninsured patients with cancer. Participation in the program is based on income. 919.707.5300 www.nccancer.com www.nccancerassist.com
This is a research tool developed by the NCI and CDC which enables users to generate data tables and interactive maps by state or type of cancer, as well as to identify peer counties throughout the state or country with similar demographics.
The NavigateCancer Foundation is a non-profit organization dedicated to empowering cancer patients and families with the tools and services they need to improve their cancer care through free, confidential, and secure navigation services delivered by experienced, credentialed oncology nurses. Create a free account at www.navigatecancerfoundation.org for secure, online, confidential conversations with an oncology nurse. If this is not possible, then call 919.267.3657 for assistance.
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Online Support
If You Know Someone with Cancer
Stay connected with family, friends and colleagues throughout your cancer journey through a CarePages website. Create a free, private website that makes it easy to provide updates to everyone at the same time, share photos, receive supporting messages, and more.
Another site that is easy to use for staying connected and sharing information with friends and family.
Survivors to Survivors
Survivors come to this site for support, information and to find someone who might have the same diagnosis as themselves. the Meeting Place for Survivors is our main board. Dory's board (green) is a place where you might find yourself laughing and crying, as it is for other than just breast cancer posts. They have about ten other specific boards regarding surgery, chemo, recurrence, genetics, young survivors, lymphedema, success, children with cancer, men with breast cancer, etc. Please visit all the boards for specific questions under a particular topic. The chat room is very active each night beginning around 8:30 Eastern Standard time. Normally, there are 8-15 survivors in the chat room around 9:00-9:30 pm.
(a service of the AMC Cancer Research Center) The CICL, part of the Psychosocial Program of the AMC Cancer Research Center, is a toll-free telephone service for cancer patients, their family members and friends, cancer survivors, and the general public. Professional counselors provide up-to-date medical information, emotional support through short-term counseling, and resource referrals to callers nationwide between the hours of 8:30 a.m. and 5:00 p.m., Mountain Standard Time, Monday through Friday. Individuals may also submit questions about cancer and request resources via e-mail. Telephone: 1-800-525-3777 E-mail: ciclhelp@amc.org
Use the Cancer Survivor Message Board to share your concerns and experiences with other cancer survivors.
Through My CRC Connections, you will be able to connect with thousands of others from across the world who are sharing similar circumstances. There is peer support and medically supervised chats. Membership is free. Members can participate in live chats, message boards, and create personal pages with photos, videos and blogs. My CRC Connections allows you to: Seek advice or provide information; Provide and receive peer support; Share personal stories and experiences; Be a part of a community of your peers; Provide updates to your loved ones; Search for other members by diagnosis, stage and location
OncoChat is a real-time global support community for people whose lives have been touched by cancer. We don't offer medical advice or professional counseling. We do offer lots of hugs and understanding from people who share similar experiences and emotions. Not all of the people who visit us are cancer patients. Some are relatives, some are caretakers and some are just friends of someone who has cancer. All ages are welcome.
Sponsored by the American Cancer Society, this is both a telephone and Web-based service for cancer survivors, their families, caregivers, and friends. The telephone component provides survivors and families access to pre-recorded discussions. The Web-based component offers live online chat sessions, virtual support groups, pre-recorded talk shows, and personal stories. telephone: 1-877-333-HOPE
The Wellness Community provides free psychological and emotional support to cancer patients and their families. The organization offers support groups facilitated by licensed therapists, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events. Telephone: 202-659-9709 OR 1-888-793-9355 (1-888-793-WELL) E-mail: help@thewellnesscommunity.org
Vital Options International is a not-for-profit cancer communications, support, and advocacy organization with a mission, to facilitate a global cancer dialogue. The Group Room cancer talk radio show is a weekly call-in radio show where listeners can tune in live every Sunday from 1:00pm-3:00pm PT and 4:00pm-6:00pm ET on select stations across the United States, XM Satellite Radio, podcast, and online at www.vitaloptions.org, where all shows and feature interviews are archived for later listening. Callers participate in on-air discussions through the toll-free hotline at 800-477-7666 (foreign access numbers for international listeners are listed on the website), and are invited to e-mail their questions and comments to info@vitaloptions.org. The Group Room is produced in association with Premiere Radio Networks and regularly broadcasts from leading US and European clinical meetings. Vital Options International is headquartered in Southern California, with its European division based in France, at the American Hospital of Paris, with radio production partners at Radio Marsden, Royal Marsden Hospital, London, UK.
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Practical Matters-Financial, Insurance, and Legal Info
For chemotherapy, every pharmaceutical company has a "compassionate care" program that you can apply for. They each have their own application forms and "hoops" to jump through, but it is worth the effort. You will need to know the names of all the drugs you are taking to then find out who is their manufacturer. I can help with that if you aren't sure.
Financial Assistance for Cancer Patients
Cancer can be a tremendous financial burden, on a patient as well as on a family. Besides hospital bills, cancer treatment includes many expenses that insurance often doesn't cover, such as transportation or childcare.
Cancer Care is a nonprofit organization that provides guidance, information, and referrals to cancer patients and families, free of charge. Cancer Care also offers limited financial assistance for treatment-related costs on a restricted basis in New York City, Long Island, New Jersey, and Connecticut. Go to their website to get tips on finding financial assistance. You can also call (800) 813-HOPE (4673)
Find the best financial options for you.
The HealthWell Foundation® is a 501(c)(3) non-profit organization established in 2003 that is committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments.
The National Association of Community Health Centers provides a listing of local nonprofit, community-owned health care programs serving low income and medically underserved urban and rural communities. 1330 New Hampshire Avenue, NW, Suite 122 Washington, DC 20036 (202) 659-8008
The National Hospice and Palliative Care Organization is a nonprofit organization that advances the philosophy and practice of hospice care. 1901 North Moore Street, Suite 901 Arlington, VA 22209-1714 (800) 658-8898
Needy Meds is a clearinghouse for free information about getting medications from pharmaceutical companies. Needy Meds makes information about pharmaceutical manufacturer's assistance programs more accessible. (334) 662-0023
Oncolink, managed by the University of Pennsylvania, is a widely respected website for cancer-related information. It includes a special section, Financial Issues for Patients that provides information on reimbursement assistance programs.
The Patient Advocate Foundation provides education and legal counseling about managed care, insurance, and financial issues for cancer patients. 780 Pilot House Drive, Suite 100-C Newport News, VA 23606 (800) 532-5274
PhRMA provides The Directory of Prescription Drug Patient Assistance Programs, which is updated yearly. It lists company programs that provide drugs to physicians whose patients could not otherwise afford them. The guide covers how to make a request for assistance, what medicines are covered, and basic eligibility criteria. 1100 15th Street NW Washington DC 20005
The National Cancer Institute's Cancer Information Services offers an extensive listing of financial assistance for cancer care. NCI's Cancer Information Services (800) 4-CANCER (422-6237)
Insurance
Researchers at Georgetown University have written health insurance consumer guides for every state. You can get a free guide for your state on the Internet.
Inclusive Health, also known as the North Carolina Health Insurance Risk Pool (NCHIRP), provides affordable, individual health insurance coverage for North Carolinians who do not have access to an employer health plan and face higher premiums due to a pre-existing medical condition. It will also offer coverage to individuals who are federally defined HIPAA eligible or qualify due to loss of employment due to the effects of international trade under the Health Coverage Tax Credit. Inclusive Health was created by the North Carolina General Assembly in 2007, and began accepting enrollment applications in the fall of 2008 for an effective date of January 2009.
Your state insurance commissioner is a good place to begin. They regulate insurance you buy on your own and most coverage offered by small employers. If they don't regulate your plan, they might help you find who does. Look in the state government pages of your phone book, or try the National Association of Insurance Commissioners web site.
The Centers for Medicare and Medicaid Services run Medicare, work with states on Medicaid programs, and help regulate individual health insurance in a few states.
The U.S. Department of Labor regulates health plans offered by many large employers.
The National Coalition for Cancer Survivorship (NCCS) is a survivor-led cancer advocacy organization that has put together a booklet (open using the link above) to help cancer survivors advocate for themselves in the realm of health insurance.
Legal Assistance for Cancer Patients
The Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.
Transportation
In addition to these organizations, you can also learn about financial help in your community by contacting the social work department of your hospital, a cancer resource center, a local cancer organization, your labor union, a community service organization, a religious organization, a social organization, and your local congressional representative's office.
For transportation, there are several companies that offer free airfare to cancer patients and their family members. Check here for their phone numbers and webpages. For local transportation issues contact area hospitals or your local American Cancer Society for the Road to Recovery Program.
Angel Flight Inc. provides, through its members, free air transportation for people in need seeking access to specialized health care facilities or distant destinations.
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Support
American APOS offers a Toll-Free HELPLINE ~ a national resource provided to help people with cancer and their caregivers find counseling services in their own communities. APOS has a toll-free Helpline through which cancer patients, caregivers and advocacy organizations may obtain referrals for local counseling services throughout the United States. This referral program aims to connect cancer patients and their caregivers to psychiatrists, psychologists, nurses, social workers and counselors skilled in the management of cancer-related distress. To request a confidential referral, please call: Toll Free 1-866-276-7443 (1-866-APOS-4-HELP) or you may send an e-mail to the Helpline info@apos-society.org
Carolina Well and Cornucopia Cancer Support Center are offering a peer support program that connects anyone touched by cancer with another person whose experiences with cancer are similar. Peer Connect was developed to assist participants in a unique and personal way by matching them with someone who has already gone through and recovered from a similar cancer experience. This program is open to anyone touched by any type of cancer ? the newly diagnosed, patients in active treatment, survivors, family members, close friends, and caregivers ? anyone who needs the support of others who share similar experiences. If you are interested in receiving peer support or becoming a volunteer for this program please visit the Coping and Support section of the website for a sign-up form for Peer Connect, or contact chresources@mindspring.com, phone: 919-401-9333.
The Comprehensive Cancer Support Program at UNC-LCCC offers psychosocial support for both inpatients and outpatients; individual, couples, family, and group psychotherapy, including Individual Supportive Counseling, Individual Psychotherapy, Couples Therapy, Family Therapy and look for Support Groups: Monthly support groups for patients So You've Got Cancer Now What? What's Next Series for newly diagnosed cancer and family members, Parenting, Return To Work, Breast Cancer, Prostate Cancer, Colon Cancer, Young Adults, Couples, Transitions Employment and Return-to-Work Counseling, Financial/insurance counseling. Please call 919-966-3494 and visit.
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Symptom Management
Connect to the latest and most accurate information on state-of-the-art management of cancer pain for patients, caregivers and healthcare professionals.
Much of the information in this section of this website is adapted from the American Society of Clinical Oncology's Optimizing Cancer Care: The Importance of Symptom Management, a curriculum that teaches doctors about understanding and treating the side effects of cancer and its treatments.
Here you will find a wealth of knowledge to help patients deal with the side effects of cancer treatment such as nausea, vomiting, fatigue, infection, and pain.
Here you can send a confidential and secure question to an oncology nursing. You will receive a confidential response back to the email address that you provide within two business days of sending your inquiry.
This website is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptom that patients undergoing treatment for a cancer diagnoses commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.
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UNC and Community Resources
Patients who receive their care at UNC and their families have many resources and programs available to them. Please visit UNC-Lineberger Comprehensive Cancer Center/N.C. Cancer Hospital and the How We Can Help At UNC section of this website for more offerings and details.
A couples-based research program for patients with breast cancer and their spouses or significant others.
Stay connected with family, friends and colleagues throughout your cancer journey through a CarePages website. Create a free, private website that makes it easy to provide updates to everyone at the same time, share photos, receive supporting messages, and more.
The CCSP serves as the umbrella organization for UNC cancer support programs: educational and counseling services, symptom management clinics, integrative medicine, support groups, and Carolina Well, the UNC-Lineberger Survivorship Program. The CCSP operates its educational, clinical and research programs at two sites in Chapel Hill: the North Carolina Cancer Hospital and Carolina Pointe II. CCSP Programs & Services include: Educational Programs, Support Groups, Counseling, Outpatient Cancer Support Clinics- Medication Management, Survivorship, Supportive Care and Symptom Management Clinics, Wellness Group Programs/Activities, and a comprehensive Integrative Medicine Program. To contact or learn more about the CCSP, call 919-966-3494; email at ccsp@med.unc.edu; or visit http://cancer.med.unc.edu.
An exercise and recreational therapy program for breast cancer patients.
The North Carolina Cancer Hospital at UNC has an oncology dietitian available to help you figure out what to eat during your treatment. Any of the scheduling staff can help you set up a nutrition appointment or you can ask your doctor for a referral. Please take advantage of this free service.
A monthly listing of events for cancer patients and their families. For questions about the calendar of events, email Anne Marie at alee@unch.unc.edu
Chaplains work with people of all faiths and religious backgrounds and an inter-faith chapel is located on the first floor of the hospital.
Dedicated to providing emotional support and encouragement to cancer patients and their families, this center provides everything from education, support, family coffees to books to wigs!
Sole Sisters
Sole Sisters is a free, 14-week program designed to help women initiate and maintain a regular exercise program. The program is sponsored by UNC Lineberger to provide education, motivation and support to enable women to begin a moderate to vigorous exercise program. Participants must register for the orientation. Registration is limited to 100 women. Call (919) 966-5905.
Medical librarians will search health-related books, articles, and websites to find the information you need and deliver it in the form most convenient to you. There is no charge for this personalized information service. Call 919-962-0800, visit the site for to fill out email request, or you can also chat with us on AIM, HotMail, or Yahoo. Their buddy name is AskHSLChat.
Comfort care is available as needed.
Carolina Well Community-Based Centers
Carolina Well is working with communities and organizations across North Carolina to provide more survivorship education and support where you live and work. Various services are provided at each of the following participating centers. Locate the one nearest you today! For more information click "In CW Community-Based Centers."
Resources in the Community
An organization that provides education, companionship, and support for people with cancer, their families and friends.
This facility provides an affordable, comfortable, and nurturing place for patients and their caregivers to stay during treatment at UNC Hospitals.
An online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.
This site provides support and community for people living with serious illnesses.
comprehensive community cancer center that offers support groups and events as well as a variety of services.
A boarding facility open to families with a pediatric patient being treated for a serious illness/injury at an area hospital or hospital-affiliated clinic.
A variety of support groups are offered in area - locate one that works for you.
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Ways to Give Back
We have numerous volunteer opportunities: Resource Center, Peer Counseling, New Patient Orientation, Focus Groups Meet and Greet, Outreach, Community Advisory Board, Office Help, Programming/Events, Grant Writing and many other options! If you are interested please contact us at info@carolinawell.org, call 919-966-9519 or 866-291-9424. You can also call the UNC volunteer office at 919-966-4793 or visit and let them know you want to be an oncology volunteer.
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Young Adults and Cancer
Although many issues people face during cancer are similar across the board, each age range has concerns unique to their group. The following are for young adults.
Crazy Sexy Cancer is an irreverent and uplifting website, book, and movie.
Part of i[2]y's mission is to link young adults affected by cancer to the myriad of young adult-specific support services out there for them to take advantage of such as weekend spa retreats, online forums and blogs, social networks, camping excursions, fertility education, peer counseling, college scholarships, financial aid, disability issues, as well as happy hours and more.
Hear firsthand from other adolescent and young adult cancer survivors as well as experts as they share their experiences and advice about a wide variety of cancer-related issues and concerns.
A gathering place for young adults, includes cancer comics, advice, cancertainment, news, current research, and forums.
The Raleigh/Durham/Chapel Hill monthly Stupid Cancer Happy Hour is a new grassroots event started by local young adult cancer survivors and is sponsored by the North Carolina chapter of I'm Too Young For This! Cancer Foundation. It is an informal gathering of young adults affected by cancer, their families, and their friends for a great evening of community, advocacy, peer support, hope, and just plain fun. Triangle Stupid Cancer Events occur on the 3rd Tuesday of the month starting at 7:00 pm-ish at rotating locations throughout the Triangle. Stupid Cancer Events are posted on the group FaceBook page
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
The Mission of the Ulman Cancer Fund for Young Adults is to enhance lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.
Young Women United Against Breast Cancer is a group that focuses on action, advocacy, and awareness.
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